40 years ago the first AIDS cases appear

[TotallyOz]

June 5, 1981 was the first cases that AIDS was reported. Five gay men in LA died and currently over 32 million have died. I have lost friends and family to this. Our community was forever changed.

https://www.hiv.gov/hiv-basics/overview/history/hiv-and-aids-timeline

[Ruthrieston]

I qualified as a Registered Nurse in Aberdeen in Scotland in 1986 but there were no jobs to be had and I was forced to move to London where I went to work in the HIV ward in St Stephen's Hospital in Fulham. We had eighteen beds in small rooms and we had at least nine deaths every day, mostly young gay men. We had to receive and transport patients ourselves as the porters wouldn't transport them, also the bodies had to be prepared by us and taken to the mortuary by the nurses too. Those were the hardest years of my life and I too lost many friends and colleagues. 

[PeterRS]

I always thought the first cases were of kaposi's syndrome identified in New York. But I see from the link that the two sets of cases were discovered on the same day.

Thank you @TotallyOzfor reminding us all of this pivotal moment in our lives. It is one we should never forget. It brings back so many memories, many of fear because in those early years being informed of a positive test was quite literally the door opening to a long lingering death. And if we had lovers or just casual acquaintances with whom we might have had sex, we were terrified of what might happen to them and then to us. The fear, too, of the possibility that we were infected and were passing death on to others.

And yet, looking back I sometimes wonder if those days were quite as frightening for most of us as perhaps they should have been. I did not refrain from sex after i had heard of HIV. I did not even start to use condoms until I had learned a lot more about the disease. But then I was in a part of the world where it took a longer time for reality to dawn. It took the death in 1987 of one whom I had loved passionately to knock me to my senses. Although we had not been together for four years, we eventually became good friends and I had had tea with him just 10 weeks before his death. His new lover informed me of his passing. He had meant so much to me that I flew the round trip of 12,000 miles just to attend his funeral. Although I was 99% certain I could not have been HIV+ as a result of our relationship, I started to think of all the other men I had slept with, many in different countries. I became more afraid. What if I was positive?

A little earlier, in October 1984 three friends in Tokyo had birthdays within 4 days of each other. They invited me to the joint party they would be holding. I said I had to decline. I just could not afford the trip. Nearer the time, I thought this is silly. They are good and close friends and I do want to be there. So I bought a ticket. I did not tell them I would be coming. So when they opened the door and saw me bearing gifts (as it were), there were lots of smiles and laughter. I am glad I went. It was a wonderfully happy evening. I ended up with another of their guests who had seemed such a quiet soul but was a tiger in bed. What I could not know then was that I would see none of my three friends again. They all died of AIDS.

I admire @Ruthriestonso much for all he did for those young men he cared for before and after death. You, sir, are one of the many saints and one of the many heroes of those times.

[reader]

It was 1976 when I met a young man whose radiant smile I could not get out of my head. We soon became fast friends and for 11 years he was the most important person in my life until he was taken in 1987. The cure began to emerge that year but too late for Billy.

I did not have another relationship like that for 29 years. This time it was in November of 2016 when another young man, standing at Soi 4 and Silom rd., smiled at me. Although I didn’t know it at the time, he, too, was to change my life and continues to do so to this day.

Those of us who lived through and survived AIDS all have our own stories. But the one thing we all have in common is that as we still await a vaccine for that horror.

Visitors and volunteers walk on the 21,000-panel AIDS Memorial Quilt on October 10, 1992 in Washington. (CNN)

[TotallyOz]

@readerI was there at the AID Memorial Quilt in 1992. It was beautiful and sad.

My first boyfriend was in NYC when I moved there. He was Brazilian: smoking hot. We were together for a few months before he told me he was positive. I didn't know what to do or say and he helped me to protect myself in the future. He said one thing that really stuck out in my mind (other than amazing sex and insane jealousy) and that was that he would not wish this on anyone so he will also be safe and protect me and others. He was a stunner. We were together for 5 years and he did protect me. And, I learned from him. As this Covid19 hits I wear a mask, sanitize, and take all precautions not just to protect myself but others.

BTW: I believe that was around 1995. He is still telling others to protect themselves and others.

 

[PeterRS]

6 hours ago, reader said:

 . . . in 1987. The cure began to emerge that year but too late . . .

I seem to recall that was the drug AZT. Although it was a breakthrough of sorts, didn't it have to be taken in a strict regimen every few hours, often along with some other drugs because like all viruses HIV was mutating? It was a Taiwanese-American, Dr. David Ho, who discovered the first real protease inhibitor treatment in the early 1990s that made life for HIV patients far more bearable. I remember only because he was on the cover of TIME magazine! I am sure @Ruthriestonis far better informed.

I still consider the account of the early history of the AIDS crisis by Randy Shilts 'And The Band Played On' the near definitive book that everyone should read. Vastly better than the TV series packed with stars of the same name. Its one major error was in propagating the "Patient Zero" myth. When the doctors in NYC and LA noticed they were dealing with clusters of cases among young gay men, they eventually realised there almost certainly had to be a common link. Their research led them to a Canadian airline steward named Gaetan Dugas. All at one time had had sex with him. His work had taken him to Africa where it was then discovered there had been a major outbreak of AIDS in the 1920s in and around Kinshasa. We now know it had jumped the species barrier from chimpanzees to humans.

Dugas was located. After being tested, he was found to be positive and informed about his passing HIV to others. He was asked to stop having sex with other men. Allegedly, he said he would not. Someone had given him the virus and he saw no reason why he should cease his activities since he was not responsible for his being infected. While that part of the tale may be true, by the end of the century it had become obvious that Dugas, who had by then died, was not Patient Zero and had been much maligned by being so named.

However, later research suggested HIV had ben present in the USA much earlier. In 1968 a 15 year old teenager named Robert Rayford from Missouri entered hospital suffering from a variety of ailments. Doctors were baffled. On questioning, they suspected that Rayford was gay and had perhaps been either seriously molested or he was a male prostitute. None of the treatments seemed to work. As his condition worsened he soon developed a pneumonia-like illness and his immune system was discovered to be dysfunctional. He died in May 1969.

The autopsy found rare purplish lesions on his left thigh, unheard of in black teenagers. The odd thing about the case was that Rayford had never travelled outside his home state and never received a blood transfusion. The only later connection thrown up was that he lived close to TWA's airline hub of St. Louis. Tissue samples were kept for later analysis. It was found that antibodies against all nine detectable HIV proteins were present in the blood samples. This was published in a medical journal in 1988 but only ever once again referred to, at a Conference in 1999 in Australia. Unfortunately the last known samples of Rayford were destroyed during Hurricane Katrina.

Dr. Anthony Fauci was one who was both curious and baffled.   “It certainly could be true, and may even be likely that it’s true,” Fauci said, “but the absolute nailed-down proof isn’t there.”

https://www.washingtonpost.com/history/2019/05/15/mystery-illness-killed-boy-years-later-doctors-learned-what-it-was-aids/

[Ruthrieston]

Thank you PeterRS for your kind and generous comment. But for me there was a real heroine in the UK who transformed how people regarded people with HIV, Princess Diana. The very well publicised visits which the Princess made to HIV/AIDS wards in London Hospitals changed things amazingly. In the early days of working at St Stephen's I remember on the long ten hour night shifts we would telephone other specialist wards. Calling the HIV ward at St Mary's, Paddington regularly I heard that a certain young lady had again sneaked up the back stairs in the early hours, and was sitting with one of her friends as he was dying. The Princess did this many times and the press never caught her. When Princess Diana came to open our new Outpatient HIV Clinic she met all the important people and spent about ten minutes with them in full view of the photographers and cameras, then walked through to where the patients who were fit enough to be there and closed the doors and then spent the next hour or more with them in private. It was the many pictures of the Princess holding hands and embracing patients that showed people that they should not be afraid. 

[azdr0710]

NBC News's first report on it.....

https://www.youtube.com/watch?v=1LKJ5ZzzL0w