Members Avalon1849 Posted April 24, 2019 Members Posted April 24, 2019 When I became a diabetic 10+ years ago my doctor did not give me a specific diet to follow unlike my mother had 50 years ago but told me to avoid the big 5 - bread, potatoes, rice, pasta, cereal plus a few other things like citrus fruit, grapes, corn, peas etc.. AVOID CARBS! But at the hospital and now at the nursing home that is not the practice. They give me these things that I was forbidden but smaller portions. I asked if there was a special diabetic diet and was told "no". Still I try to avoid the bad stuff as much as possible. Last night for dinner there was a mixed vegetable, a small slice of pepperoni pizza and a chocolate chip cookie. I ate the pizza. A few hours later my blood sugar was 265. This morning it was 133. Quote
Members numerito Posted April 24, 2019 Members Posted April 24, 2019 Amazing that a nursing home doesn’t have a special diet for diabetics... caeron, MsGuy and OneFinger 1 2 Quote
caeron Posted April 26, 2019 Posted April 26, 2019 I remember reading years ago that one of the frequent features of those who survived for a long time with AIDS in the early years was that they'd fired doctors. The point of it was that they took control of their own care and didn't just do whatever they were told. I've taken that lesson to remind me that my healthcare providers are my paid consultants, but at the end of the day, the decisions were mine to make. Not my business, but it sounds like you need to fire your nursing home and find somewhere that is more committed to keeping you healthy. We're rooting for you. AdamSmith 1 Quote
AdamSmith Posted April 26, 2019 Posted April 26, 2019 1 hour ago, caeron said: I remember reading years ago that one of the frequent features of those who survived for a long time with AIDS in the early years was that they'd fired doctors. The point of it was that they took control of their own care and didn't just do whatever they were told. I've taken that lesson to remind me that my healthcare providers are my paid consultants, but at the end of the day, the decisions were mine to make. Not my business, but it sounds like you need to fire your nursing home and find somewhere that is more committed to keeping you healthy. We're rooting for you. In caring for my 90-yo mama, she and I almost always have to do our own online research to find today’s best practice documented in the journals, and bring it to the docs to get right Rx + competent expert referrals. boiworship and MsAnn 2 Quote
Members boiworship Posted April 26, 2019 Members Posted April 26, 2019 It’s really disappointing to discover how incompetent so many are. AdamSmith 1 Quote
AdamSmith Posted April 26, 2019 Posted April 26, 2019 54 minutes ago, boiworship said: It’s really disappointing to discover how incompetent so many are. This is my PCP. https://www.wakemed.org/brian-t-klausner-md-primary-care-internal-medicine Georgetown, then U of Chicago Hospitals. When I first called and asked for him, the nurse operator said, ‘Are you sure? He’s only in 2 days a week, because he’s on so many best-practice boards and committees.’ YES! MsGuy and boiworship 1 1 Quote
Members trencherman Posted April 28, 2019 Members Posted April 28, 2019 (edited) On 4/25/2019 at 11:12 PM, caeron said: The point of it was that they took control of their own care and didn't just do whatever they were told. I've taken that lesson to remind me that my healthcare providers are my paid consultants, but at the end of the day, the decisions were mine to make. This is the exact position I have taken regarding medicine as a whole. My doctor prescribed me 50 mg of a high blood pressure drug, I started researching this particular drug as soon as I got home and one of the sites I trust cited a study that 10 mg of this medicine is the optimal dose. I therefore quartered the tiny pill and took approximately 12 mg and it worked for me. Seems a dangerous step for most ailments, but I have been doing this for the last four years without telling my doctor. For T2 diabetes in particular, a safe stance to take is to view it as effectively carbohydrates intolerance, so avoid ingesting carbohydrates. To reverse your T2 diabetes, watch Dr. Jason Fung's clips on Youtube. He is a kidney specialist disgusted by the kidney failures he had to deal with in people on long term diabetes medication. Edited April 28, 2019 by trencherman minor gram. AdamSmith 1 Quote
Members Avalon1849 Posted April 28, 2019 Author Members Posted April 28, 2019 The last two early mornings my blood sugar has been under 100 - in the 90s. First time I can remember. I try to control my diet here. I don't eat bread rolls, French toast, bread etc.. No desserts. Etc.. numerito and caeron 2 Quote
Members MsGuy Posted April 28, 2019 Members Posted April 28, 2019 Avalon, nursing homes are regulated by the state, mostly under Federal issued guidelines. There are mandatory rules howmany staff (and what kind) have to be on duty to how often they are supposeed to roll over bed ridden residents. I seriously doubt that there is no requirement that they have a diabetic friendly diet available. Not to saay that any given facility actually complies with the rules (except on paper). Try calling whichever state agency issues their "certificate of public need and convience" and complain virgorously. Quote
Members Avalon1849 Posted April 29, 2019 Author Members Posted April 29, 2019 I don't want to cause any problems here for the nursing home. I'm here for 100 days max - that's all that Medicare will pay for. I don't know what will come next for me. My income is not great enough to pay for assisted living. My last week at home I sat in my own shit for a week. I called the rescue squad and they took me to the ER and I was there for 10 hours and was sent back home. My MD that I had not seen for a year came by the next day for a home visit for half-an-hour but did nothing. A few days later I called the rescue squad again and they took me back to the ER and this time I was admitted to the hospital. I was there for two weeks. I had "wounds"/sores on my butt. They went away but have now returned. numerito 1 Quote
Members Avalon1849 Posted May 6, 2019 Author Members Posted May 6, 2019 On the top of my menu card is CCHO This explains the diabetic carb diet https://www.mc.vanderbilt.edu/root/pdfs/humannutr/Information_for_Unit_Staff_on_Consistent_Carb_Diabetic_Menu.pdf Quote
erickmeaney Posted May 7, 2019 Posted May 7, 2019 Unless you take control over your situation you are in a "no-win" situation. You should be having meetings with the Nursing home admin discussing what comes next and what can be done to help you. if you get into this situation again in the very near future you will find out that your Medicare benefits have expired and you'll have no where to go. Medicare will no pay for repeated Nursing home stays. Did you get a wheelchair? (It should be covered under Medicare) Are you eligible for in-home care? (You should discuss with the Nursing Home the benefits of having them apply for Medicaid for you. Medicaid will pay more for services than medicare) Have you seen or talked to a Social Worker? If so, what did you discuss? What benefits are available to you from you local city/state governments? Are you currently receiving any rehabilitation (physical and occupational therapy services)? numerito 1 Quote